Isabel Penston is a 5th grader at Edison Elementary. In July 2010 Izzy was diagnosed with a rare neurodegenerative disorder named Friedreich's Ataxia (FA). FA is a life-shortening genetic disorder which afflicts about one in 50,000 people. Symptoms include impairment of vision, hearing and speech, scoliosis, diabetes, heart conditions and loss of strength and coordination in legs and arms. Izzy's symptoms began at age 5 and she is already using a wheelchair 75% of the time. She suffers from scoliosis and moderate cardiomyopathy. At this time there are no effective cures or treatment for FA.
Izzy's Angels are currently trying to raise funds to help find a cure for FA. Three local bands, Old Stock, Golden Age and Old Coal will entertain the crowd all the while raising money and awareness for FA and The Friedreich's Ataxia Research Alliance (FARA). This was a super fun event last year that is sure to sell out soon.
Tickets are $40 each and includes wine, light fare, raffle, dancing and of course, Hope for Izzy. Doors open at 6:30 pm and there will be NO TICKETS AVAILABLE AT THE DOOR!
For more info on Izzy and to buy tickets, please visit www.hopeforIzzy.com
For more info about FARA, visit www.curefa.org
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